Categories
Blog

Time crawls by

It seems as though life is at a crawl here. However, I expect our tolerance for waiting will increase tomorrow, when Allison and her family arrive! It will be good to have the distractions, and something to engage us while we wait for what comes next.

Four days post-surgery, we have adjusted to the status quo. Robert is set to see the plastic surgeon on Tuesday to have the official unveiling. His head is wrapped with what Dr. Convit called a “mummy bandage.” Essentially, there is an ace bandage covering the gauze that covers his wounds. It keeps pressure on the graft site – and also creates tension around his face, which is the major discomfort he feels. On one side it covers the incision from the sentinal node extraction. On the other, we can see the gauze.
He also has an incision on his abdomen where Dr. Convit took the skin to graft to his head. This is less troublesome for him, he says – he doesn’t feel it. However, it is bandaged and needs to be kept dry.
We have figured out how he can shower – with a bag over his head! Of course we don’t tie it in around his neck, but he cut it off so that it is long enough to keep the mummy bandage dry – it sits up there loosely, like a hood. To cover the abdominal incision we use waterproof tape to afix a section of the bag that was cut off. It works OK – not perfectly, but whatever dampness got inside seems to have dried quickly.
He also has figured out how to sleep with his head and shoulders elevated, as instructed. The first night he sat in a chair, but he’s been able to sleep since then. I think the Percocet helps him get to sleep, and three pillows keep his head and shoulders up.
And now, we wait for the biopsy results. I have not yet inquired why one specimen was to be examined locally while the others went to Boston. It’s a question for Dr. Boisvert when we see him on Wednesday.
So, not much to report on the melanoma front. We’ll let you know when there’s something to say. And in the meantime, I’ve bought new pillows – and toys! What fun!

Another learning experience

I probably would have learned more if I knew how everything got fixed …

Yesterday I accidentally put this site in maintenance mode to install updates – but I was logged on as hazel instead of as user1. Big mistake! I couldn’t get to the site to install the updates. When I tried to log in as UID 1, I got a 500 error. Oops …
Robert used the situation as a learning experience – one of the configuration files wasn’t set up right. After he fixed that, I could log on as user 1 to run the updates. I finally found out where to put it back online – go to Configuration>Development>Maintenance Mode. Seems easy enough and a I probably will remember it.
The most important thing is that the updates seem to have fixed the problem I was having with the Terms field on my blog post nodes. If only I knew what caused the problem and what caused it to go away …
One of the problems here is that I really don’t want to know! I have little interest in the back end of Drupal. It’s a good thing that part of running a site keeps Robert engaged and learning, because I don’t know how I would be doing this without him. And I really don’t want to know that!

Update – one day post-surgery

All is relatively normal at the Becker house today. Robert is somewhat uncomfortable under the bandages, but not too grumbly. I was able to get to the gym today, so I am less grumbly than I would have been otherwise! We plan to go out for a short while this evening, so if you try to call but don’t get us, please don’t assume anything is amiss here. Leave a message on our machine and I’ll respond as soon as I can.

Why Drupal?

In responding to one of my earlier posts, Sandy asked why and when to use Drupal. Probably the best answers are those given by Tom Geller in the Lynda.com course “Drupal 7 Essential Training.” On most Lynda courses the first few videos are available even if you don’t have a subscription, so Tom’s answers may be available to anyone who’s interested. I’ll spell out my answers below.
First, to address the question: Drupal versus WordPress? I’ve used and set up blogs on WordPress – it’s about as easy as a content management system could be. It also now offers many options for designing a blog to suit your functional needs. You can put up images and MP3s, and you have a lot of themes to choose from in designing your site. It’s a wonderful way for techno-idiots to put up a blog.
Drupal is NOT wonderful for techno-idiots. However, Sandy is not a techno-idiot, and I don’t think she would have a major problem installing and maintaining a Drupal site. So, the answer for her will be found in other factors.
The first questions you should answer when making this decision is: does your server have the minimum technical requirements, and will your ISP give you server access or help you set up the site? Specifically, for Drupal 7 you need 15 MB of disk space; an Apache 1.3 or 2.x server or a Microsoft ISS server; MySQL 5.0.15 or higher database with PDO, or PostgreSQL 8.3 or higher with PDO; and PHP 5.2.5 or higher (5.3 recommended). If you can’t meet those requirements and are not willing or able to change ISPs, there’s no need to consider Drupal.
Between us Robert and I manage five Drupal sites – now six, including this one. We didn’t choose this CMS, but it was highly recommended for the Kehila Chadasha site by a database-savvy person who understood the group’s need for an ecommerce system that would be secure and trusted. As we learned the system, we decided to use it for our business websites because we wanted the ability to share documents with certain people – in my case with clients, and in his case with other lawyers who do similar kinds of work.
Over the years Robert has added two other sites that he runs for nonprofits he is active in. Between us we now have one blog, two informational business sites with some content restricted to people we have approved for access to it, and three nonprofit membership sites that are updated by teams of people. Two of the nonprofit sites can handle secure ecommerce transactions.
So, in five of our cases we have had several factors tipping the scale toward Drupal:
·        the need for secure ecommerce transactions,
·        the need to restrict access to some content, and
·        the desire have a system that others can learn to update.
For this blog, the Drupal site is definitely overkill. However, I’m also using it to learn and experiment with Drupal 7, so this choice was easy for me.
I don’t hesitate to suggest that someone with Sandy’s technical background could manage a Drupal 7 site. The new interface is much simplified and really very easy to use. I’m still learning, and if you keep visiting this blog you should see the features become more robust over time – including, I hope, the ability to restrict access to content for designated users.
If you have specific questions about whether your site is a good candidate for Drupal, drop me a line. I’m far from an expert, but I do have a few years of Drupal experience and would be happy to help site developers puzzle through this question.

Done!

Surgery is over. Waiting to go home.
They took five nodes. We won’t have biopsy results for 2-3 weeks.
All for now.

Glad that’s over. And now we wait!

We arrived home from Washington Hospital Center at about 2 p.m. – hungry, tired, grumpy. A bowl of soup, and now the patient gets to rest while I go out to do the things that need to be done.
The surgery lasted about 2 1/2 hours. The smiling, reassuring plastic surgeon, Dr. Rafael Convit, and the excellent oncological surgeon, Dr. Marc Boisvert, came to talk with me in the waiting room a little after noon. They decided to take out all five nodes that “lit up” on the nuclear medicine exam – one on each side at the base of the skull, and three smaller nodes further down the neck on the right. Robert’s head is wrapped with a pressure bandage covering all his hair (what there is of it!) and the bald patch on top, where the skin graft was done. He also has an incision on his abdomen where they took the skin needed for the graft.
The pathology is being done at two different labs – the lymph nodes are being sent to Boston University, and the scalp skin will be read locally. I’m not sure the reason they aren’t all going to Boston … I think it has something to do with the kind of stains they want to do on the samples of the lymph nodes. 
Robert recovered fairly quickly – he had regained some color and was able to get dressed by around 1 p.m. Our trip home was uneventful, and now he’s reading. He thanks everyone for the good wishes you’ve sent – as do I.

Getting ready for Monday

Some folks have asked what our schedule is for Monday. Here it is.

Up at 4 a.m.

4:30, leave home to make sure we are there on time – they have said if we’re late they will cancel the surgery.

5 .m., check in at Washington Hospital Center – why so early? I don’t know!

7 a.m., go to nuclear medicine to have the radioactive dye injected so they can look for the sentinel node(s).

When that’s over, take the pictures and go to the ambulatory surgery center to meet Dr. Boisvert and Dr. Convit.

9 a.m., surgery starts.

Dr. Convit (the plastic surgeon) says the surgery will take between 90 minutes and 3 hours, depending on how long it takes them to actually find the sentinel nodes.

at least one hour in recovery after the surgery is over – so it could be after 1 p.m. before we come home.
Robert will have a “mummy bandage” on his head covering the skin graft for about eight days. I don’t know what kind of dressing he’ll have on the donor site, but I understand that often takes longer to heal. Some people have numbness around the graft site for a while afterwards. Some surgeons apply a hard cap over the bandage, held on with a chin strap, to keep pressure on the wound site.
We may not want to talk with anyone except Allison and Loren on Monday, so please don’t be worried if we don’t answer any of our phones. My mother has promised to worry enough for everyone, being the worrier-in-chief. We’re going to be fine, but we will likely be tired and grumpy on Monday. Sorry!
I’ll post something here as soon as I can after the surgery – maybe while he’s in recovery, if my iPad works OK with this website. (That remains to be seen. I’ve tested but didn’t much like the results because I can’t use the WYSIWYG buttons.) Otherwise, it will be later in the day.

Deadline!

I’m trying to make this website work well enough to keep people informed of Robert’s progress on Monday. I don’t think I’ll succeed.
It’s a good time for me to bring some perspective to this effort. True, I would like to avoid countless telephone calls on Monday. I was hoping to have the site built out so that I could ask someone else to post updates for me. That way the burden of updates could be shifted so that anyone who wants one could get it without my having to post them.
I probably could do it if I did nothing else between now and bedtime Sunday. Not going to happen…
So, back to the issue of perspective: I know that Monday is not the end of our road. It’s a good bet there will be ample opportunities to use this website that way in the future.
I’m going to work in my garden tomorrow! Then I’ll work on this blog.

Categories
Blog

Another step

To learn about Drupal 7 I’m going through Tom Geller’s course, Drupal 7 Essential Training, on Lynda.com. In the video about creating user accounts, Tom talks about the site developer’s need to understand why the site is being created in order to decide what policies to set for new users:

can anyone in the world create an account? 

can only the administrator create one? or

can people create accounts that will be activated when approved by the administrator?
He ends his tutorial by saying that it depends on whether you are creating the site because you want to publish, or because you want to invite others to comment. That made me stop and think …
This should not have been a revelation for me – I’ve done this for a living! But I did not think that part completely through before I started working on this blog-site. My first thought was to create a mechanism to tell our family and friends what’s going on with Robert’s melanoma so that we don’t have to go through the same story and answer the same questions time after time.
So far, however, more of my posts have been about learning Drupal 7. That may be because, until now, that’s been more immediate – we have been playing a waiting game on the melanoma front. That’s about to change, however, as surgery is only four days away. I suppose that means it’s time for me to tell people about this blog, and decide the sign-up will work if they want to comment. That’s a task for tomorrow …
 

Categories
Blog

Biding our time

The business of waiting is not one either Robert or I come by naturally – we both “just want to know already” and move on toward doing something about it. From the beginning, this melanoma thing has not cooperated with our need to move things along.
We were advised on May 14 to make an appointment with the Melanoma Clinic at the Washington Hospital Center’s cancer center. Easier said than done – after two days of calling and not hearing back, they told us we would have to wait two weeks just to get the first appointment. When you have just been informed that you (or your spouse/partner) have metastatic melanoma and you find out that the prognosis is six to nine months, two weeks seems like an eternity!
Luckily, Robert’s primary care physician, Mitch Dunn, was able to speed things up for us! Instead of waiting until May 30 for the top guy in the Melanoma Clinic to tell us what was next, Dr. Dunn ordered the PET scan that we knew would be needed. He also smoothed the way for us to get an appointment with William Sharfman at Hopkins. Washington Hospital Center also responded by getting us an appointment earlier, at least with some of the doctors there.
Things moved along pretty well — Robert had the PET scan, and we found out that the cancer has not spread (or at least is not evident big-time) to his organs or elsewhere on/in his body. Good news! And, Dr. Sharfman told us he is not certain this is metastatic melanoma – it may be a primary dermal melanoma, or maybe the primary site with regression on the surface. That we may never know which it is does not comfort me. However, the prognosis is better for the other two options, so that’s what I’m going with at this point.
The next step is surgery to take off the cancerous skin on top of his head and take out the sentinel node(s) to be biopsied. When your doctors are in demand, just scheduling the surgery can take time. We found out June 1 that it had been scheduled for June 18 at 9 a.m. So now we wait.
Very hard, all this waiting. There’s still cancer on his head. We need it gone.
And now, we have an inkling that Monday, June 18, will be another day with too much time spent waiting. The surgery is set for 9 a.m., and we have to be there four hours beforehand. They tell you that if you are late they cancel your surgery. OK, 5 a.m. it is, then …
There’s a reason to arrive early. The appointed time is for the surgeons and the procedure room (or operating room or wherever the cutting will take place). Before the surgery, Robert needs to go to Nuclear Medicine to have some radioactive dye injected and pictures taken so they’ll know which lymph node(s) to biopsy. But when the nurse called to ask him the pre-admission questions (all of which he has answered many times before), she indicated that Nuclear Medicine will see him at 7 a.m. It will be interesting to see what he needs to do between 5 a.m. and 7 a.m. — I’m sure there are papers to fill out and sign, and he’ll have to get undressed for surgery, but I’m not sure how that could take two hours. 
So, we’ll be biding our time. We haven’t yet gotten to be very good at this waiting game. But, we’ll be there at 5 a.m. on Monday, June 18. And, if there’s nothing else to do, we’ll wait!